tag:blogger.com,1999:blog-5547479290499038449.post234910202433963915..comments2023-11-02T04:40:03.661-05:00Comments on Fertile Hope: Tube Weaning: Day 4Unknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5547479290499038449.post-80549160438456305352010-05-04T20:27:25.216-05:002010-05-04T20:27:25.216-05:00*hugs* hang in there, I know it's so hard. You...*hugs* hang in there, I know it's so hard. You're doing so well though.Azaerahttps://www.blogger.com/profile/00778026696324592463noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-46900505380512437722010-05-04T18:00:03.846-05:002010-05-04T18:00:03.846-05:00Prayers you have. Glad he did eat and drink somet...Prayers you have. Glad he did eat and drink something. Every mL counts. He'll be okay. If you have to postpone the weaning and up the tube feeds again to get his weight gained back in a couple weeks, fine, then you'll just work on it again in a bit. He'll get there, in typical Robbie style, at his own pace and time. You are a GOOD momma!!!Searchinghttps://www.blogger.com/profile/03112896236818363817noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-84311310369134510002010-05-04T11:48:02.631-05:002010-05-04T11:48:02.631-05:00Praying for peace for you in the situation, and fo...Praying for peace for you in the situation, and for willingness for Robbie to take more.Tashahttps://www.blogger.com/profile/07698577505948929856noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-814733405770931942010-05-04T09:19:57.175-05:002010-05-04T09:19:57.175-05:00You are doing wonderful! You are very brave. I wou...You are doing wonderful! You are very brave. I would love to do this for my DD, Leah, who has been tube fed all of her life. A story very similar to Robbie's, NICU and all. Except she has a twin. (Luckily, not tube fed, but was very close to it at a few points.) I get it. And I totally relate to the bungee jumping analogy. I never thought to think of it that way. One day, I'll be brave enough to try tube weaning...Kristenhttps://www.blogger.com/profile/03108569992517366402noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-83309271776917874782010-05-04T08:29:02.942-05:002010-05-04T08:29:02.942-05:00I think you are doing wonderfully! Will keep you i...I think you are doing wonderfully! Will keep you in my thoughts....Deep Thinkerhttps://www.blogger.com/profile/16241705545787556164noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-71286140302009373952010-05-04T01:49:44.399-05:002010-05-04T01:49:44.399-05:00You are doing great. I gained strength from think...You are doing great. I gained strength from thinking about you today and stuck to my guns about my sons lunch and snack. He didn't want to eat lunch or the snack provided so he didn't eat. For supper time we did give in and get "Josh approved" meals for him since we were exhausted and just wanted to be able to put him down and relax. But I made sure to offer those choices instead of trying to get him to eat something I wanted him to first so that he didn't not eat, and get the food he wanted anyway, thus giving him a "victory." But as you were saying...baby steps.<br /><br />Any exposure that Robbie gets to drinking and eating is a step in the right direction. Inch by inch or mile by mile, you get there in the end. Robbie will get there.Alexhttps://www.blogger.com/profile/10463243543517574653noreply@blogger.com