tag:blogger.com,1999:blog-5547479290499038449.post6311073314899133003..comments2023-11-02T04:40:03.661-05:00Comments on Fertile Hope: WearyUnknownnoreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5547479290499038449.post-65354670285169036652010-11-04T12:20:51.985-05:002010-11-04T12:20:51.985-05:00You know, even though I got to make the fabulous p...You know, even though I got to make the fabulous post yesterday about weening the boys down on their formula through the pumps, I can tell you and know that you and Becky understand, that as wonderful as it is I am freaking the hell out about it. I'm so exhausted and frustrated and overwhelmed by this, our biggest feeding challenge yet. And now 24 hours later it has been a terrible eating day for the boys and I don't know if it's because they are hungry and don't know how to deal with it, cranky because of the Periactin, picking up on my supremely high anxiety and panic, or just a fluke. Probably all of the above. In any case, your response to Becky's email... that's me too. Hang in there. We need a whole lot more sleep.Laurahttps://www.blogger.com/profile/06785482241331351560noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-38265442348544254592010-11-04T00:18:19.653-05:002010-11-04T00:18:19.653-05:00Sending you some calming zen and prayers to just g...Sending you some calming zen and prayers to just get through the day.Searchinghttps://www.blogger.com/profile/03112896236818363817noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-41537064161711173712010-11-03T23:22:00.400-05:002010-11-03T23:22:00.400-05:00I have a 2 year old. His speech is fine and he is ...I have a 2 year old. His speech is fine and he is a biter. It's a two-year-old thing. He keeps biting this one girl at daycare and I have apologized to the mom. It's demoralizing and embarrassing. Luckily (I guess), she also bites. Terrific! *shaking head* <br /><br />Anyway, I just wanted you to know that it's normal. Hang in there. Robbie is still beautiful and all yours! I find that I always love my child, but don't always like him. Sort of how I feel about my husband...! Just kidding...sort of!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-75131660494628659512010-11-03T23:20:34.161-05:002010-11-03T23:20:34.161-05:00Sending you my love and prayers for a better tomor...Sending you my love and prayers for a better tomorrow and an even better one after that.Two Handshttps://www.blogger.com/profile/03525454388105006044noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-72172642365632222002010-11-03T22:49:42.037-05:002010-11-03T22:49:42.037-05:00I have a 25 weeker who is now 5. Every appointment...I have a 25 weeker who is now 5. Every appointment for the last week has been reminding me that we are to little. We did not have to tube our son though some days i wish I wouldn't have fought it so hard. Even at 5 we think calories but I no longer write it all down. I realize that one day he eats way more than he needs the next night he eats nothing. He doesn't drink anything that isn't fizzy. It is the hardest thing in the world. <br /><br />The crystal ball lies. Even if they say things are fine we find we still have an up or a down even if we know the end result. Things still take our breathe away when we least expect it. Things still make us sad. Other things make us happy and yet the crystal ball forgets to tell us those parts. <br /><br />Good lucknancyhttps://www.blogger.com/profile/16943446751465263123noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-79762906595367421602010-11-03T12:52:07.406-05:002010-11-03T12:52:07.406-05:00Trish - I just kept nodding and relating so much t...Trish - I just kept nodding and relating so much to this post. From NICU to speech delays to feeding issues. My son's feeding issues are nowhere as complicated as tube weaning etc. Still the whole getting bogged down and tired bit resonated with me since its one of those weeks here too!<br /><br />You soldier on tirelessly but all I wanted to say is I'm glad you vented! The bar keeps getting higher for evals and though Robbie is making so much progress it is still a game of catchup. :-|<br /><br />I'm rooting for you because you give me hope!ggophttps://www.blogger.com/profile/13152025930955161430noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-20761293577569614492010-11-03T09:54:46.516-05:002010-11-03T09:54:46.516-05:00erin, yes! I remember you donating. Thank you so m...erin, yes! I remember you donating. Thank you so much again! <br /><br />I must confess, I feel guilty for having posted this whine and then you come and tell me how positive I am. I really wasn't feeling anything positive at 1:00 this morning. <br />I do my best. But some days it's just all so overwhelming. <br /><br />Robbie's last speech eval, he was close to 28 months old and averaged out at 12-15 months on his speech eval. Receptive was 15 or more, but spoken was 12 or less. <br />We've definitely made improvements since then, but are nowhere NEAR where he should be for either his actual or adjusted age. <br />He currently gets speech therapy twice a week, once focusing on language, once focusing on feeding. <br />He also gets OT twice a month. <br />(This is all down since our last IFSP. He was getting Speech 2x, OT 1x and PT 1x each week. And developmental therapy 1x/month.) <br /><br />We've definitely come a long way. But sometimes we just seem so far away from the goal that it's hard to tell. <br /><br />Anyway, thank you both for your kind words. I appreciate them.Joyhttps://www.blogger.com/profile/04150585209390355119noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-79694442531729092762010-11-03T06:48:24.167-05:002010-11-03T06:48:24.167-05:00Two things, I am a LOOOONG time reader hardly ever...Two things, I am a LOOOONG time reader hardly ever comment though (I sent some blankets and stuff when you were collecting for the NICU). One you are an AMAZING woman and mom. I used your story as a reference for our preterm baby and everyone was amazed by you and our strength and how positive you were (I referenced some of your posts). Also I am understanding the frustration of a toddler that doesn't talk. I was so worried about his speech EVERYONE told me not to worry but I did so I called our state's early intervention team and found out his expressive language is at 11 months (he is 20 months) what a blow but I thought of you and how positive you try and be and that is what I am trying to do, so thank you.Erinhttps://www.blogger.com/profile/09804206770898071326noreply@blogger.comtag:blogger.com,1999:blog-5547479290499038449.post-16204115523753314292010-11-03T04:05:42.323-05:002010-11-03T04:05:42.323-05:00Wow. Your life is nearly identical to mine. I was ...Wow. Your life is nearly identical to mine. I was going to say a bunch of wonderfully supportive things but it's 4 a.m. I can only say I understand, and I wish you a much better tomorrow.Sarahhttps://www.blogger.com/profile/09786711719995952934noreply@blogger.com