Thanks to everyone for the suggestions on corn-free foods.
I spent a while at Whole Foods last weekend with some (expensive) results. I didn't find anything in the cereal aisle, but I did find potato crusted fish sticks, corn free breaded chicken nuggets, a number of different kinds of crackers & chips, some sweet potato fries and a few other odds and ends.
So far, he doesn't like the fish sticks (frankly, neither do I. Blech.) but is sort of okay with the chicken nuggets. He liked the sweet potato fries up until a point. They have pepper on them, which isn't too hot.. until about 5 minutes later. He freaked out. There was clutching at his tongue, drooling and frantic whining. Way to go, mom.That's just how to get your kid to like food. Unfortunately they only had 2 options, and the other was jalapeno. So much for that. I'll try to make my own next time.
At Maureen's suggestion, I checked out the chocolate chex. That is probably our biggest win. He loves them. He ate 1/2 cup of them yesterday. That's about 85 calories, and they are fortified with a number of vitamins & minerals. He liked one of the kinds of pita chips and I was impressed he was able to eat a whole one one day. They're large and very difficult to crunch through.
He has definitely improved his eating again, though. He even let me feed him some purees on Saturday. It had been nearly 3 weeks. I was so nervous that my hands were shaking, but he did great. He ate about 6.5 ounces with little protest.
I've also been working with him on self feeding with a spoon. It's very challenging since he doesn't really WANT to eat stuff, and then if I can talk him into it, he's not great at it. My method of choice has been to just put a very small container of yogurt and a spoon on his little table and let him make a mess. He likes to stir and sometimes will sort of lick the spoon. Mostly he drags it all over the house making a mess. The cats are happy, I'll say that much. That's a morning activity, only, though. David doesn't seem to have the patience for the mess.
Mostly it's just been nice to see him enjoying food again. Still no real luck with drinking. I found some corn syrup free chocolate syrup (nestle nesquick for anyone interested) to flavor some milk with, but he won't even try it. Drinking is so intermittent that it's hard to catch the right mood. He won't drink a drop for weeks at a time, then will pick up a cup and drink an ounce or two of water out of nowhere. I can't leave milk out all the time, so I can't have it available 100% of the time. And if he's expecting water and gets milk, he is unhappy! But one of the days, we'll get him to try it and he'll be happy.
He had an evaluation by his new OT today. She seemed nice enough. I made it clear what my concerns are (feeding & drinking, and decreased water phobia) and what they aren't. She seemed okay with that. I didn't get a formal report, but we'll go through the whole thing at his next IFSP next week. She did comment several times that his fine motor skills were quite good, as were his oral-motor skills (she seemed surprised. I don't know why people never believe me when I tell them that.) so we'll see what she says as far as therapy recommendations.
My hope is that at the IFSP we can go to just three therapies per week (down for 4 every week, 5 some) and to combine either OT or speech with feeding therapy on the same day so that we're not tied to the house almost every day. I'm really hoping that she'll agree to OT twice/month, not even every week. We'll see what they say and what kind of scheduling we can work out.
I'm just not really convinced that any of the therapies are working great except maybe speech and I'm finding myself more and more resentful of the time factor. I'd like to be able to have play-dates and park visits, but instead we're stuck at home for therapy appointments all the time.
He'll be starting a new daycare on Sept 27 and be with other children closer to his age (there is only 1 his age at daycare now) and I think that will help a lot with his development as well.
Really, I have great hopes for the next 6 months. I just need to be patient and let them come. It's easy to say, but a lot harder to live. I'm trying very hard to focus on the big picture, but sometimes it's hard to see much beyond having a spoon thrown at you or the fact that he still doesn't call me momma. I'm a worrier by nature, but Robbie has certainly proven to me that he is far more capable than I always give him credit for. I need to trust him...and God.