Our team of OTs just left.
Our specific therapist (Karen) came with the head of the place (Trish.)
Trish pretty much said the following:
-she doesn't think it's an oral aversion. She agrees with me that he LIKES to have his face and mouth messed with. He enjoys a pacifier. The trouble is with EATING, specifically.
-she thinks it's reflux and general digestive discomfort. He has a lot of gurgling and gas while he eats and is definitely still refluxing. She thinks the meds are working to keep the reflux from burning, but that doesn't make it any easier for him to swallow while stuff is trying to come back up.
-generally, he has so much going on in his digestive system that he just can't focus on eating.
She suggested the following:
-swaddling to eat even though it pisses him off. It just helps him organize and focus.
-thickening his milk with Simply Thick
-a warm compress (probably going to get a Happi Tummi) for his tummy to help with gas
-improved stomach strength so he can bear down and move things along better
-wants me to talk to the GI doc about possible dumping syndrome
-trying distraction while eating. Suggested baby einstein videos as a way to keep him focused on something else. She wasn't thrilled with the suggestion since we don't want him hooked on TV, but that's something we can wean him off of later.
All of that is fine but I need to find out how Simply Thick affects the life span of my breastmilk. If I thicken 3 oz of breastmilk and he only eats 2 can I still reheat that remaining 1 oz for the next feeding? Right now I can.
I don't have an oversupply of breastmilk. I only make 20-22oz of breastmilk a day at this point. His food goal for the day is 19. He sometimes eats 20 or 21 oz (a good day, obviously) so if I have to start pouring out breastmilk, that's going to be a problem.
Karen thinks it's more like gelatin than anything and shouldn't change anything, but I need to know.
And as a side note, Karen thinks it's possible he may have thrush. There is a small white spot on the back of his tongue but it could be milk. But since we see the pediatrician tomorrow, I'll have them swab him.
The feedings through the night went well. (And he slept well!) but the feeding we tried to give him while they were here was........stressful. Of course, it's hard to say how much it was affected by strangers in the house etc.
Trish finally got him to take about 2 1/2 oz. That's how she really evaluated him. But at least she got to see what I'm dealing with and was very sympathetic.
We also discussed dietary changes for me to make him less gassy. Which honestly almost made me cry. She was suggesting a no carb diet.
Can someone tell me what the hell I'm supposed to eat?
Between his gut and my gallbladder, I honestly don't know. Low fat, but high protein, but low carb with no dairy. So.. lettuce with some grilled chicken on it? I don't get it.
For now, we're ignoring the dietary thing and trying the other stuff. If we get back to the dietary stuff, I'm going to insist someone give me a menu of what to actually make because honestly, I just don't know. I'm willing to give up anything for him, but I have to eat SOMETHING.
Can someone please tell me when he's going to outgrow this?