Wednesday, February 4, 2009


Well, we're admitted.

He was up a whopping 5oz in the last 28 days.

I was proud of myself that I didn't cry. But tears came later.

Right now the plan is IV Pepcid for a day and see what happens.

We got up to the peds floor (the newly renovated peds floor- all private rooms THANK YOU GOD FOR SMALL FAVORS.) and got situated.

They ordered some labs.

Then came the baby torture. I admit that I cried. He screamed and screamed and screamed until he was hoarse.

They put an NG tube in. Then an IV. They had trouble finding a site for the IV because he has so much scar tissue from when he was born. (Don't mind the shattering sound. That's just my heart.)

Then a heel stick for more tests.

It took a good hour for me to get him calmed down after that.

Then came the news that his hemoglobin is low. They want to do a blood transfusion. It could be making him weak. No one knows if it being low made him eat poorly or if eating so poorly made it low.

The transfusion meant more tests. They have to type and cross (though I do NOT understand why when he's had blood transfusions here before but they tell me it has to be less than 3 days old) so that meant another couple of needles. They couldn't hit a vein and finally ended up doing another heel stick. More screaming. More crying- from both of us.

Another while to calm him down.

The only good news is that while I went downstairs to get my suitcase from the car, they gave him his first dose of Pepcid. The day nurse said when she came in he was fussing a bit. She gave him the IV Pepcid and five minutes later he was perky and cooing. So perhaps it really IS his stomach.

Right now we're trying to feed him every 3 hours. Anything less than 2 oz gets fed into the NG tube.

Of course, most of it has gone into the tube. He isn't interested in eating AT ALL.

I can't blame him. This sucks for me and I'm not getting jabbed with tubes and needles every few hours.

But I know it's for his own good.

So far the nurses have been pleasant. The NICU PT came by to see us earlier. She'd seen our name on the board. I told her to feel free to send more friendly faces.

I also ran into our pediatrician when I was getting our things from the car. She hugged me and assured me we would get to the bottom of this. She'll be in to round on him tomorrow.

We're mostly staying in and hiding.

The baby in the room next to us has RSV. I can occasionally hear her crying and coughing. There are signs on the door and I see the nurses gown up before going in. But I still prefer to hide.

So that's what we're doing.

Currently Robbie is semi-sleeping in David's arms while fresh blood, Pecid and fluids pump into his IV.

I'm considering going to the cafeteria to see if they have some honey roasted Bugles. This is the only place I can find them. If only that made up for the rest of it.

Thanks for the continued thoughts and prayers. We're going to be here at least a few days. We need them.



Stacie said...

Trish. Demand the numbing patches to be placed on Robbie BEFORE they stick him. Hospitals have them, but you have to ask for the patches. Otherwise, they will just overpower him and cause him undo pain! There is no reason for them to get him that upset when they have tools to prevent it. Demand it.

I know from personal experience.

Hugs. Hoping that this is a short stay and the answers come quickly.

Much love.

camille said...

I am thinking of you and your sweet little boy. Baby torture just sucks. I know it's for his own good but that doesn't make it any easier during the heel sticks and IVs.
I hope these next few days pass quickly, that you get some answers, and that you can take him home soon. Hugs!

Monica said...

You guys are in my prayers. Hope you get some answers.

Kristin (kekis) said...

Oh honey, I'm sorry. I'll hope, pray, cross everything, call out the moose, and keep praying some more. Thankfully you have a pedi who actually is listening and taking action. They have to get to the bottom of this now.

Take care of YOU.

Doreen said...

Oh, I want to just cry for you (with you). I'm sorry you and Robbie are having to go through all of this. Looking forward to some positive news soon (as I'm sure you are!).

Anonymous said...

Sending lots and lots of prayers for Robbie.


Heidi said...

I am crying for you. What a terrible ordeal you are all going through. I am so sorry.

Sending you and Robbie all my love.

ALC said...

oh honey... I am thinking of you and Mr. Robs everyday. I'm so sorry, but I hope they are able to find out what's going on quickly. I love you!

weeza said...

I can only find Caramel Bugles for you online :(

(((hugs))) to you all

Meghan said...

I have high hopes for Robbie. I hope this admition gives you answers!

My DD was in the NICU for 4 weeks for feeding intolerance. Once they discovered (and why it took so long I dont know) her hemoglobin was low and starting treating her for it, she was out with 5 days eating perfectly. She recieved Epogen shots 3x a week for weeks after. A nurse came to our house to administer them. At 4 months old her bloodwork came back fine.

I am hoping thats all it is for Robbie and he will be home soon scarfing his bottles like nothing!

Always thinking of you trish. i dont comment on your blog much but I read it everyday!

ivory and jamie said...

You guys have been in my prayers and will continue to be. I wish there was some way to help, but for now we'll just hope that this trip does the trick :)

**Sissy** said...

Oh honey, I'm so sorry. I'm keeping you guys in my prayers. Hopefully these next couple of days go by quickly and you get some answers.

And the blood for a cross match does have to be drawn each time because they have to actually have his blood to cross match to each unit that they are going to give him to make sure that there won't be a reaction. So, while it seems like an unnecessary stick, it helps safe-guard against reactions to the blood.

(((BIG HUGS)))

(Ditto Meghan, I don't comment much, but I read multiple times a week)

Two Hands said...

It would be nice if you could get an EMLA patch before he got stuck to numb things first. I don't know if they do that for heel sticks, etc. but it's worth asking.
I hope they find out quickly what the problem is so you can go home and just enjoy having your Robbie. I had one Robbie party when he went home the first time, I'll have another when he is eating like the little hero he is. My poor Trish, I wish there was something I could do. Much love always.

Aidan's mom said...

I'm so sorry. I can only imagine how this all hurts. There are lots of emotions that are going to be tied to this.

You know and everybody who has known preemies who have dealt with this know that you are doing the right thing for Robbie.

I think it takes courage to admit that help is needed. And further to take that extra step to hunt down the needed help. You are the one initiating all of this. Forwarding your concerns to therapists, doctors, etc. Making sure that Robbie gets what he needs...whatever that may be.

Many hugs to you.

Amy said...

Praying, praying, praying ... ooh I hope the numbing patches work. I know that helped a lot with my dreaded injections!

Tracy said...

I'm praying they find the answer to help Robbie. I'm sorry this is torture for both of you.
((big hugs))

Life in the South said...

You are all in my thoughts and prayers!!! I'm so sorry you are going through this.

Leah said...

I am sure they have but have they doen an ultrasound on his tummy to see if there is damage from his surgery or something else going on in there? My prayers are with you.

Harmony said...

I am so sorry. We are praying for you guys.