Tuesday, July 22, 2008


The digestive issues continue.

He had a lot of diarrhea yesterday again.
The nutritionist came down and wanted to add some sort of fortifier to his breastmilk because his growth pattern is so pathetic. They said no because of his stool issues.

He did gain 40 grams last night which is good. They weighed him with his CPAP on so there might be an extra 5 grams in there that isn't his, but still, it went up and it went up the way it should. That's good.

Then I called to check on him this morning and he'd have bloody stool overnight. Got an Xray, everything looks okay. But my nerves are shot.

His breathing is still very good.

Basically, everyone is discussing what to do about his tummy.
They discussed trying him on formula because sometimes they'll tolerate 24 calorie formula better than they'll tolerate breastmilk fortified to 24 calories (BM is 20 calories on its own.) That made me sad and scared me because of the digestive issues and my fear of NEC.

They also discussed maybe trying to move his NJ back to an NG (back to his stomach instead of his intestines) to see if that helped. That would be my preference, but I'm not a medical professional. But I can't help but wonder if the bloody stool incident won't make them try that before they do much else with his food.

The NJ tube helped his breathing by leaps and bounds, but the hope is that he's older and much improved now so maybe he could handle a bit more reflux than he could a few weeks ago.

I don't know. I just know we need prayers. Lots of prayers. Goats, llamas, moose, whatever.

In the meantime, my dog has his surgery this morning. Wish him luck, too.

And last night the whatever-it-is in my side went crazy. The ultrasound of my gall bladder said it was fine but that my liver is enlarged and fatty. I don't know what the deal is, but I did have some greasy chinese food yesterday and almost went to the ER last night. It started aching a bit when I was kangarooing but was manageable. But by the time I drove home from the hospital, I was literally moaning in pain.
I came in and tried to lay down but nothing helped. I was in tears.

David brought me one of my motrin leftover from after I had Robbie (which I didn't even need for the C section but HAD to have last night) and I slept for a while sitting up.

This pain is mostly in my back, on the right side, radiated to the front and into my shoulder. Upper right quadrant pain if ever I heard of it. I'm just waiting for the doctor's office to open this morning.

I won't be going to work today. Mostly I'm just playing it by ear. Drop the dog off at the vet, call the doc when they open and then depending when they can see me, I might sneak up to the hospital to see Robbie during the day, or I might wait and go in the afternoon. We'll see.


P.S. If any preemie moms out there dealt with digestive/growth issues like that, I'd love to hear from you. I'm terrified and could really use some stories of encouragement.


seussgirl said...

Hi - I haven't read all your background yet, but I came over from Stirrup Queens to give you some encouragement. My twins were born just shy of 30 weeks, and one of them developed NEC. He was on an NJ tube for weeks, and they tried different formulas for awhile. They even talked surgery (for both boys), but the same week they were certain they'd have to do surgery for their reflux, they both did 180's and didn't need it. The boy who had the NEC took right to breastmilk and bottle feeding as soon as they took out the tube. It was as if he was saying "what were you waiting for?"
My boys spent 8 weeks in the NICU, and have been home since May 1st. They're getting bigger, stronger, and more beautiful every day.
You can e-mail me if you want more discussion or details on our NICU stay.
seussgirl at gmail dot com

I wish you and your baby a speedy recovery! (and now I'll try to read the background!)

jess said...

Lots of prayers that they can get this resolved. I'm always thinking of you and your family. I hope you feel better very soon. ((((hugs)))).

Rachel said...

Just wanted to say I'm thinking of you and Robbie. I really hope they figure out what will help his digestive system at this point.

Anonymous said...

I am from the Sticky babies and I just wanted to say that I check on you daily and always say a prayer for all of you. I read today about you pain in the upper right quadrant. I am surprised it is not your gall bladder. I had the exact same pain you did after having my daughter and it is terrible! I totally understand what you are going through there. I had my gall bladder removed 10 days after having my baby girl and I feel better. I still have some pain, but the Dr said I had some inflamation in there. I hope they can figure out what is going on for you. Hil56341

Janna said...

Thinking of you and praying for your precious Robbie. I can only imagine how terrifying and exhausting this roller coaster is for you.

I hope you feel better soon!!! (((HUGS)))

Two Hands said...

Trish! It never rains but it pours! Can I take a few minutes of side/back/everywhere pain? Or take over worrying about Robbie for a little while? Man, I wish I could do both and then some. Please let me know if there is ANYTHING I/we can do....

Anonymous said...

I'm praying for you and your family!! I was wondering if they have tested your gallbladder--or if you even still have it...Sounds like that to me by the symptoms you exhibited---I had a HIDDA Scan to diagnose....just my two cents worth.

heather said...

I've told you that my preemie had digestive issues, and she still is very, very slow to gain weight. Is he still on TPN or is he getting all of his nutrition orally? It DOES sound like he's burning a lot of calories through breathing. But really, I don't know anything other than what we experienced. I'm always around for questions, PLEASE don't hesitate to email me with ANY.