Monday, July 7, 2008

Good stuff

Robbie is still off the vent. As of 7:15 tonight, he'd beat his previous record of 36 hours. I'm still not 100% convinced that we're done with the vent. They said his chest X-Ray before they extubated him wasn't really fantastic, but they wanted to try.
He had a pretty quiet day but tonight his O2 needs were up a fair bit and he was less stable than he's been the last few days. I've already told myself that even if they have to reintubate, it's okay. Obviously NOT needing it would be great, but any time off of it is good, so we're doing him a favor with every minute he's without it.

Other than that, there hasn't been much going on with him. He has his 1st eye exam tomorrow. He's at super high risk for ROP (retinopathy of prematurity) but fortunately they usually outgrow it and it is treatable with laser surgery and such. So I'm trying not to be too concerned about it.

Kangarooing without the vent has been amazing, I have to say. To not have to move SUPER slowly, SUPER carefully is great. Being able to move his head a bit so I can really see his face (without the aid of a mirror) is amazing. Hearing his little voice is fantastic.

I do feel guarded, though. I've learned that reveling too much in the highs makes the lows especially crushing. But for now, things are going well.

In other good news, I got my hands on my MRI report today. It would seem I DON'T HAVE BRAIN CANCER.

Findings: The ventricles are normal in size & position. There is no midline shift, mass effect, hemorrhage or abnormal enhancements. Parenchymal signal is normal. Midline structures and posterior fossa are unremarkable. Vascular flow-voids are normal. Mastoid air cells and paranasal sinuses are well-aerated. There is prominent CSF along the coronal sutures bilaterally, slightly larger on the right. There is no associated signal abnormality or enhancement. This is presumably a normal anatomic variant and is unlikely to represent a focal pathologic process.


1. Unremarkable brain MRI.

This, of course, doesn't explain the head numbness (which I really thought was improving, but tonight seems to be tingling weirdly again) but I'm celebrating no tumors. I just have a weird shaped head. I always knew my brain was a little twisted. Now I have medical proof.

And, in what I think some of YOU will call good news- I have pictures!

Robbies "home"

Pre-Extubation pictures:

Mommy & Daddy give me a bath:

Sleeping baby

No more vent:

Someone tell Mommy that 2lb babies can't have chubby cheeks. She doesn't believe me.

Snuggle time without vents & tape!

What is going ON?

I'm free!

Oops, I think I farted:

I think I like this thing they call a paci



Osh said...

he looks like you!!!!!!!!!!!!!!!

and hooray for no brain cancer!

Anonymous said...

YAY! Your brain is!
My love to you, Robbie, and David!

Amy said...

He is soooo cute!! And he really does look like his mama. :) (With whom I'm doing the dance of joy for an unremarkable MRI!)

Christopher and Tracy said...

I love Robbie's pictures, especially the one with the paci! And he looks fantastic in your arms!

I'm glad you have an unremarkable brain! Hooray!

Anonymous said...

WOW, he's looking fantastic! This makes my day. Still cheering for you ...

- HH/Julie

DreamCatcher said...

Ok, I'm not sure what happened there so forgive me if this ends up posted twice.

I am sending big huggles your way. He really is looking fabulous. You are amazing and I just know things are going to keep going in the right direction.

I'm glad your brain is unremarkable. You have to love seeing those words. :)

BIG HUGGLES to all of you.


Jess said...

::happy dance for no brain cancer::

Robbie looks fantastic, I love being able to see his little face now. Lots of prayers still for you, David and Robbie.

Mrs. Spit said...

The goats are working, the goats are working!

Yaaaay Robbie.

Rachel said...

Great photos! And I'm so glad that the MRI showed good news for you.

Nicole said...

delurking to say you have an absolutely gorgeous baby and also congrats on the no brain cancer, you've been in my prayers!

Spork Fashion said...

So many hoorays! Good Stuff is an understatement!

Me said...

Thank Goodness for no brain cancer!!! (And yay for the little one being off the vent too!)

Mama Wannabe said...

Glad you're okay. Cute baby... love the farting pic. :D

Just Me. said...

AWW Trish, thanks for sharing those pictures.

Both of you look great! You've gotta love the farting pic, alright! :)

And whoo-hoo for no brain cancer!

Thinking of you guys everyday!

Elizabeth said...

=Who would have thought I'd just cheer for "unremarkable" Yea! no brain cancer.

The pictures are fantastic! He's a beautiful baby and looks so much like his mom.

Anonymous said...

Your son is just too precious for words. You and your husband are truly blessed! I'm so glad that he's doing so well and growing so much! Take care...

S said...

Wonderful news!! He really looks like he has grown so much in the new pics!!

Pam said...

what a beautiful baby! he really is adorable. :)

Two Hands said...

For no brain cancer and for Robbie looking so great.
Goats indeed, sure you haven't graduated to llamas?

Kristin (kekis) said...

No brain tumor + a chubby-cheeked baby = MUCH MORE than good stuff!!!

julie said...

he is amazingly precious! I'm so glad your brain is good!