again

Welp, my kid extubated himself again today. I just talked to his day nurse. She was changing yet another "giant poop" and Robbie coughed and out came the tube.
She said he just laid there and looked like "What?!"

She suspects he had outgrown his tube. He gained another 80 grams (that puts him at 1lb 15oz!) and she said they choose the tube size based on weight.

So he has yet another fresh tube and a clean butt. And is now apparently sleeping peacefully.

Since he extubated himself the other day, every time I warn the nurses they say "I heard!" so he already had a reputation. I suddenly picture Little Johnny jokes only "Little Robbie."

Fortunately (?) they all seemed amused by it, not annoyed.

She did say he seemed a little puffy and may need some lasix to get rid of some water. Apparently that is common when they gain weight quickly. I'm told I don't need to worry.


In other news- not sure if you saw mrs. spits comment on my last blog- but apparently the scalp tinglies is a labetilol thing (That's the BP med they just took me off of.) I went and looked it up and sure enough- it's listed as a side effect. Perhaps I'm NOT going to die of a brain aneurysm after all. I'm still going to call the doctor because I was told to, but I do feel relieved about it. It's weird to not feel part of your head.


David has his doctor's appointment this morning. I don't expect answers today. I figure they'll either do some tests or send him to a urologist, but either way, we won't know anything right away. But at least he's there. Essentially- he had a fairly significant amount of blood in his underwear. I found it when sorting the laundry. He acted like it was no big deal. I nearly had a nervous breakdown.

We wait and see.

Keep praying.

--Trish