Sunday, June 29, 2008


Robbie is doing about the same.

He is retaining some water again so his weight was way up last night. He's officially listed at 2lb 6oz (yeah, that gives him a 1 day weight gain of 4 ounces. That's not real.)

As of right now, they don't plan to do anything for the fluid. His sodium balance is too low (he gets sodium supplements in his feeding tube every day) as it is, so they don't want to flush his fluid out and screw him up any more. He's pooping and peeing just fine, so they're not really concerned about it.

They moved some of his tests up. Apparently the doctor shares my don't-know-what-the-fuck-day-it-is disease and thought Tuesday was Monday and ordered it all wrong. He realized his mistake today and moved everything but the head u/s up to tomorrow.

Tomorrow he gets:
Trach Aspirate

And..umm.. something else. All but the trach aspirate is pretty much routine. The trach aspirate is to see if the bacteria growth is gone. PLEASE pray that it is.

He started some breathing treatments today because his right lung was a little gunky looking today. Albuterol. His oxygen needs were up a bit today, so the nurse asked if they could start them a bit early and they did. It did seem to help. Let's hope it continues to. He gets them every 6 hours.

They're still hoping to head for extubation at the end of the week again. For the first time, I'm really nervous about it. I just REALLY, REALLY want it to work this time.

He's fussy still. He just isn't every settled. Even in his sleep, he fidgets every few minutes. It drives his monitors crazy. And therefore his nurses. The nurse he had yesterday and today was very, very patient, but I worry that they all aren't so patient. I hate to think of them frustrated by my wee tiny one.

And yes, I know- that's their job. But still.

So, in any case, tomorrow is a test filled day. All of Robbies, and my head scan.

And I guess I'll call my OB and see if I can get a referral to a neurologist.



Stephanie said...

I'm sending lots of prayers your way for Robbie! I don't always post but I think of you and pray for your family often.

Kristin (kekis) said...

Oh, Trish. You must be completely and totally worn out. I'm sure you know that, but you probably don't realize how incredibly exhausted you are. I wish I lived there so I could provide you some Robbie relief. I'm squishy & have big boobs, so we'd kangaroo just fine. :)

I'm sure the docs told you, but the albuterol can make him fussy or agitated. Just fyi.

Lots of prayers for tomorrow's tests and appointments for you & David. You're all bound some relief soon.

angie said...

Whats his weight these days?

AngelsAmid said...

I'm praying all the tests come back good! =)

Me said...

What a roller coaster you're on!